So much has happened since I posted over 2 years ago. My youngest child, now 11, has been actively battling with a rare health condition. He was diagnosed when 5, but we knew something was up by 2 1/2. It just took over 2 years to find a doctor who knew what his condition was. If you meet us, most people would never know anything was going on. I'm thankful for that and have been pretty quiet about his condition because I don't want him treated differently or stigmatized in some way. However, our last doctors appointment gave me much to think about. One of the specialists who sees our son recommended I "put myself out there." So what is his condition? Parry Romberg Syndrome. He won't die from it, but he does have to learn to live with it. Every person with PRS has a different story. Some have seizures, others only facial atrophy. Most will have headaches of some degree and may develop anxiety, or depression. A ...