Sews2Reap

Here is the history -  (if you want to skip this scroll down to the next bolded section) I don't post a lot about my son's medical condition. He was diagnosed with Parry Romberg Syndrome at 5 years old. I knew something was wrong starting at 2 1/2. It took over two years and lots of doctors to get a diagnosis and start treatment.  Because PRS is a rare disease, ( Click the link to learn more about  Parry Romberg Syndrome .) there hasn't been much research or treatment history for this condition. We were so fortunate to find a doctor who happened to read an article about it, start some research and figure it out.  Beginning treatment at age 5 slowed the atrophy and scarring that characterizes most PRS patients. His symptoms and pain went into remission at age 5 with the treatment of steroids and low dose chemo. He went for nearly 4 years with check-ups and no medication. We were so thankful! The remission ended at when he was 9 with a stroke-like episode out ...

It is has been quite a while since I have updated on my son's journey with Perry Romberg (PRS) and Trigeminal Neuralgia (TN). Honestly, it is easier not to talk about it. Pain is the shadow over his childhood. I am a positive person and I tend to only talk about the things that uplift. No one likes being around the person who always talks about their problems. As a rule, I try to talk about it only when asked. If someone asks my son how he's doing, he always says "Good." No matter how he feels. The answer is good.  It's easier.  So here is where we are today. He is almost 14, tall, thinning out, smart, sassy at times, quiet mostly, with a tendency towards kindness, gentleness, and dark humor. He's creative, smart sensitive, handsome. All the stuff moms always say.  Until a two weeks ago he hurt every day. Usually all day. The best medicine we have found is in his friendships. He smiles more, laughs constantly, and seems to be able to put the pa...

I made Purification spray today! It is just the right thing for sneakers, teen boy rooms, refreshing throw pillows, stale rooms and so much more! Here is how to make your own. Put 1 tsp baking soda in your bottle then fill nearly full with hot water from the tap. Put on the top and shake to dissolve the baking soda. Open back up and put in 10-20 drops of purification and shake again. My bottle was 4 oz so 15 drops was just right. I have made other room sprays with this same technique and different oils. Here is where I got my great bottles! Blue Spray Bottle