Sews2Reap

It is has been quite a while since I have updated on my son's journey with Perry Romberg (PRS) and Trigeminal Neuralgia (TN). Honestly, it is easier not to talk about it. Pain is the shadow over his childhood. I am a positive person and I tend to only talk about the things that uplift. No one likes being around the person who always talks about their problems. As a rule, I try to talk about it only when asked. If someone asks my son how he's doing, he always says "Good." No matter how he feels. The answer is good.  It's easier.  So here is where we are today. He is almost 14, tall, thinning out, smart, sassy at times, quiet mostly, with a tendency towards kindness, gentleness, and dark humor. He's creative, smart sensitive, handsome. All the stuff moms always say.  Until a two weeks ago he hurt every day. Usually all day. The best medicine we have found is in his friendships. He smiles more, laughs constantly, and seems to be able to put the pa...

I know it has been a while since I have been on here. February has been a full month with visits to my son's specialists in Dallas, two birthdays and lots of pain for my sweet boy.  Some good things are happening along the way. For some time now our family has been trying to clean up out eating. We are eating less and less processed food and heavy meats, while we increased seafood, and fresh fruits and vegetables. You can read about the beginning of this journey here  Simple Does Not Mean Easy I know it's basic stuff and we are still striving. Some family members struggle more than others. If you were to look in on us you would see the lines are drawn boys vs. girls. My oldest has been doing the best, as she cut out all meat, sodas, and most processed foods. She loves seafood and vegetables. My other daughter is also a very healthy and wise eater, and more disciplined about exercise.  The whole family has been trying to get this one area right be...

Learn a little about Parry Rhomberg Syndrome by clicking the Wellness tab or the picture below.