Sews2Reap

It is has been quite a while since I have updated on my son's journey with Perry Romberg (PRS) and Trigeminal Neuralgia (TN). Honestly, it is easier not to talk about it. Pain is the shadow over his childhood. I am a positive person and I tend to only talk about the things that uplift. No one likes being around the person who always talks about their problems. As a rule, I try to talk about it only when asked. If someone asks my son how he's doing, he always says "Good." No matter how he feels. The answer is good.  It's easier.  So here is where we are today. He is almost 14, tall, thinning out, smart, sassy at times, quiet mostly, with a tendency towards kindness, gentleness, and dark humor. He's creative, smart sensitive, handsome. All the stuff moms always say.  Until a two weeks ago he hurt every day. Usually all day. The best medicine we have found is in his friendships. He smiles more, laughs constantly, and seems to be able to put the pa...

Click on the "Young Living Essential Oil" tab and learn about the Reconnect Kit. It was specially formulated for spectrum kids! There are loads of testimonies all over the internet.

My son is going to his first sleep over in over a year.  Since his pain has grown and become unpredictable and his nights have been some of his worst times, sleepovers have been impossible.  I am excited, and so is he, for this simple childhood event to be back in his life! This is a trial run.  He will only be a few miles away and with people we trust completely.  It's not so simple though.  Not only do we pack his clothes but also his medications.  Each dose in its own baggie with instructions.   This is just to get him through the night.  So here is the biggest challenge for me.  It isn't letting him go - I so want him to have every "normal" good childhood experience he can.  It is trying not to overwhelm the family in whose care he will be. Not sending pages of detailed instructions with a timeline and explanations for each medication.  I know they will call if there is any question about anything.  I keep telling m...