Have a plan and be ready to change it!
My son is going to his first sleep over in over a year. Since his pain has grown and become unpredictable and his nights have been some of his worst times, sleepovers have been impossible. I am excited, and so is he, for this simple childhood event to be back in his life! This is a trial run. He will only be a few miles away and with people we trust completely. It's not so simple though. Not only do we pack his clothes but also his medications. Each dose in its own baggie with instructions. This is just to get him through the night. So here is the biggest challenge for me. It isn't letting him go - I so want him to have every "normal" good childhood experience he can. It is trying not to overwhelm the family in whose care he will be. Not sending pages of detailed instructions with a timeline and explanations for each medication. I know they will call if there is any question about anything. I keep telling myself he takes his meds all the time with