Posts

Showing posts with the label update

Perry Romberg & Trigeminal Neuralgia Update

Image
It is has been quite a while since I have updated on my son's journey with Perry Romberg (PRS) and Trigeminal Neuralgia (TN). Honestly, it is easier not to talk about it. Pain is the shadow over his childhood. I am a positive person and I tend to only talk about the things that uplift. No one likes being around the person who always talks about their problems. As a rule, I try to talk about it only when asked. If someone asks my son how he's doing, he always says "Good." No matter how he feels. The answer is good.  It's easier.  So here is where we are today. He is almost 14, tall, thinning out, smart, sassy at times, quiet mostly, with a tendency towards kindness, gentleness, and dark humor. He's creative, smart sensitive, handsome. All the stuff moms always say.  Until a two weeks ago he hurt every day. Usually all day. The best medicine we have found is in his friendships. He smiles more, laughs constantly, and seems to be able to put the pa...

Sewing Room / Office Update

Image
I have been loving my special space for months now. Choosing all the special things to embellish my room has been a slow work in progress. Here is where I am today. I just added this ghost chair and the shuttered mirror. The hunt for a mirror has been on for months. This one was on the clearance aisle this week and I was thrilled! The flower swag is staying in some form but I'm not loving it the way it is. Ghost chair, because it's functional, visually minimal,  and kinda cool.   Sewing corner!! My little lap quilt is finally bound and has little loops to hang it with. For now, it will live on my wall. I want to hand quilt it so I take it down and work on it and put it back up. :) I have a quilt update too, look under the Create and Craft tab at the top. My hubby painted the dress form stand to match my room and added wonderful rollers. Now, I can wheel it where I want and drape or fit in comfort. The poster in the corner is a hand-me-down from my daughter...